If you struggle with Vulvodynia, or vulvar pain syndrome, you are not alone! There is a HIGH percentage of us with fibro who struggle with this. Chapter 11 in Dr St Amand’s book goes into detail on why this is happening, what’s going on in your body, why it’s fibromyalgia, and how you can treat it!
Along with the Guaifenesin Protocol, which is reversing all the symptoms of fibro, he offers some very specific things you can do to help.
Dr St Amand refers to Dr Willems treatment of vulvodynia suggesting ‘expert biofeedback and pelvic massage or pelvic floor therapy can make pain bearable’ page 236. also using topical vaginal estrogen (sal free) creams.
Emu oil can also help as it’s an inti-inflammatory with the ability to rebuild thinning.
Prelief is helpful for vaginal burning.
Antihistamines can help.
Clive Solomons, Ph.D has an low oxalate diet that is found to be helpful also, you can find the info for this diet at http://www.thevpfoundation.org
please note what Dr St Amand says about Mucinex in regards to women with this, in his book WYDMNTYAF on page 241,
“extremely sensitive women may wish to avoid Mucinex, the bi-layered guaifenenesin, because the blue dye can be a problem for them.” Click this link for: Different Guaifenesin’s available and where to buy them.
Check out the book by Dr St Amand, ‘What Your Doctor May Not Tell You About Fibromyalgia‘ for all the information and helpful advice you can get for fibromyalgia and it’s symptoms.
We also have a confidential support group online for Vulvodynia. You can request to join by sending me your email address and I will add you. It’s a Group on Facebook, but I made the settings so that nobody even sees who’s in the group, along with nobody seeing any posts and comments on there 🙂
Click here for FAQ of the Guaifenesin Protocol and Salicylates
Could you pls add me to the volvodynia private blog. I have been suffering for years and alway doctors have put me in the too hard basket, with all my ailments. Many thanks
Hi Stephanie!
Are you on Facebook, this group is on Facebook. and I need your email address. You can email me here and I can connect you. fibrobuddies01@gmail.com
Hi Christine, my email address is gandsbell@bigpond.com
Many thanks
Hi Stephanie, I just sent you the invite to join the group. You should receive an email through Facebook. You may need to check your spam folder. <3
Christine could you please add me to the Vulvodynia group
Bghmyers@yahoo.com
Thank you.
HI Beverly! I just invited you to the group. Your invite from Facebook should show up in your email in the next day or so. You may need to check your spam folders though, to be sure you don’t miss it! Let me know if you have any trouble <3
Hi Beverly! I just added you, check your notifications and let me know if it doesn’t show up! Thanks! 🙂
Hi Christine. Can you please add me to the vulvodynia Facebook group. My email is selvasong@gmail.com. thanks!
Hi Christina, I just added you 🙂 Let me know if you have any trouble. It can sometimes take a day or so to show up in your notifications.
Hi i have v Aswell as fibro would you be able to add me on julia.fuhrmann1990@hotmail.com
Hi Julia! I just added you, so you will need to check your Facebook notifications for the invite to the group. If you can’t find it there, check your email and your spam folder 😉