How to live with Fibromyalgia Fatigue and Chronic Fatigue Syndrome (CFS)

Fatigue is just such a real part of our lives, it’s like eating supper. You just have it. But what does it MEAN to a person with it? How does it affect our lives?

Think of it like a bank account. You have a certain amount of energy for a day. When you draw from that account, it diminishes until it’s gone. When you over-do it and draw past that amount, you have a debt that WILL be paid tomorrow, and the next day. Depending on how far along you are in this.

For more help, check out my Video on tips for surviving the holidays with cfs.

I remember when My Fibromyalgia started to hit me, I was running regularly. 30-40mins about 4 times a week, and LOVED it! It actually HELPED with my energy. When I didn’t run, I felt sluggish and yucky.

Fast forward a year, and running was ALL I had energy for. When I ran, nothing else would get done in a day. Showering was all I could do. I started running less and less time. Still not understanding that I was actually sick, I decided to start small again, start at just 5 mins running and work up from there. I never got passed 6 minutes. I would be nauseous and dizzy, get a fever and have to lay down for the rest of the day. Still not understanding it was the running, I kept at it- that’s why I got all the way to 6 minutes of running! haha! I got terrible infections (yes, plural infections) from running that time. Resting wasn’t enough.

I was drawing from an empty energy account.

Over the years I have tried various times to start up my exercise routine again, only to be met with infections and illness. Check out this post to help with this: Exercise- how to rebuild energy without crashing- guest post by Dr Melissa Congdon

Now I know. I do a little. Rest. Do a little more. Rest. Evaluate every day using my symptom Journal how I did the previous day and see if it was enough/not enough.

You see, we have these things called ATP and mitochondria that gives us energy and get used up by illness. when all your energy is busy fighting off the illness all over your body, you have no energy to be active. The less you do each day, the less you will be able to do tomorrow. It is SOOOO important to keep doing what you CAN do to keep up the little ATP and mitochondria that you have. Thus, using a symptom journal everyday to be sure I do enough, but not too much. I now have a cleaning schedule. To do a SMALL amount every day. Check it out: How to Get the house Clean with Fibromyalgia.

YOU ARE NOT LAZY, you are SICK!

Be encouraged friend! Share with your loved ones the bank illustration, Be honest with them about what you are doing when you over do it, and how that affects you. TELL them your symptoms when you over do. Remind them of how very much you WANT to do everything they can do, but you will pay for it.

OK, now after all of that about having so little energy, I HAVE to tell you what I am doing to re-gain my health. Little by little I am doing MORE every day and getting my health back. You can too, and I don’t get paid to share this with you, in fact, this protocol is so cheap, you will be frustrated that you didn’t hear of it before. Please meander over to my post on What is the Guaifenesin Protocol in my Own Words. and let me know your thoughts, questions, concerns, I am here to help you! for free! <3

I have a lovely friend with fibro and CFS who has a website and book to help people through this, totally check it out! Her name is Chantal Hoey Sanders 🙂 http://www.chantalhoeysanders.com/Chantals_Web_site/Welcome.html

Check out this post! Exercise- how to rebuild energy without crashing- guest post by Dr Melissa Congdon

Click for complete list of: Frequently Asked Questions (FAQ) about the Guaifenesin Protocol and Salicylates

Linked up at: Time Warp Wife  /  Growing Home  /  New Nostalgia  /